Joe Reilly. Longford Town Father Paddy Reilly, Longford Town, Mother Christine 'Nevin' Reilly(Mullingar originally). Grand parents who came to longford, upon a accident, his Grandfather Tom was hit by a car and lost his life. Leaving wife and Joe's grandmother Bridge widowed. The family settled in Longford Town. His father Paddy only 13 at the time, had to give up on his schooling to help provide for his family he worked most of his life . not long after leaving school and going to work he met and married his Joe's from mother MullingarJoe's Siblings Thomas, Bridget, Pa,Mary, Christine, and Hughie. schools went to, were, St Josephs, Boys School, St Michael's, and the Tech, Templemichael College Longford Town. Heroes are not Hollywood actors in movies, they are made of flesh and blood, and I had the pleasure of meeting one today, as you will learn as you learn of this Gentleman's story. The love of music runs deep in our family. Father was always a lover of Country music. He only recently started playing guitar in the last two and a half years, but im getting ahead of myself with the story. I met my other half Bernadette, via an leaflet in my door once. There was a photo of Bernadette on a flyer for some local course. I knew a girl that was on same course. I asked her to get me her number. Being honest was because i was a persistent fella, I finally got the lady, took time to persuade her I wasn't a stalker. After He left school He worked in Lyon,s Meats with my brother thomas every town person would remember that meat factory. My father worked in it too. because of his lack of schooling, he refused a promotion of Foreman because he couldn't read or write. I did a couple of courses, and i also worked in tool and plastic, and on moving with Bernadette to Granard, worked in Pat the Bakers. We started a family, we suffered a great couple of losses, I dont think i will every trully get over. Jamie, was only four months old when he passed due to cot death. and lost our 16 year old son Nathan to Suicide. it was tough was very tough. being honest I didn't know how to deal with it, took a long time, before i started to deal with it. I turned to music to help me deal with it all.I remember before we lost our Jamie, i was singing in a pub in Granard the night before, think the pub was called Harpers, the band playing asked me to sing a song. I sang The Coward of The County. I gave up music altogether after that. Music runs in the family. three years ago, Our Uncle John passed away. My uncle Skinner Reilly gave me his guitar. Saying nobody else would make use of it. It was in Nathan's room. I never played Guitar before. few months after Nathan had passed away, I though I need to do something, seen the guitar in his room. Picked it up, and felt a great affinity with music, it was really only the thing that helped. I have a passion a love for music. everybody has something, music was my thing. The first song i learnt to play on guitar was The Wagon Wheel. I started to learn my way via YouTube. Was a few months, after when Tony Owens, approached me. He was part of LCRL Mental Health. He asked was their anything he could do to help me,give em a break for an hour or two once a week. I said to him Guitar lessons yeah guitar lesson. He got the grants and set up the group. Paul Phillips From Teffia, Taught us how to play guitar. we called the group Little Things. Still going strong, and its not just guitar there is many instruments, you dont even have to play anything. You can just go along to listen and talk about anything you wish. Its as the back of Crossans, in the middle of Town across form Longford Arms Hotel. Just go to the back of Crossans you cant miss it you will see a window and the sign for Little Things. couple of guys dropped out, one to join a band,still a few that go and get together. Whatever is said at the group stays within the group. Tony suggested we write a song, see what happens possibility of getting it recorded. I was inspired and written two songs that I worked night when I went home. One was called the little things And the other called Never Got To Say Goodbye. We haven since got them onto CD, with the backing of LCRL and HSE. Once I gave a CD to Christy Moore. He was playing at Paveen Point. I approached him at the end, not wanting to hassle him or anything , just passed him the Cd He asked me to write my number and details and also asked would I stand in for a picture Christy rang me when in got home .He asked about the cd and said he will up with me. He said 'are you related to John Reilly, also known as 'jacko'. Christy made some of songs famous,Jacko' John Reilly had written. Rattle Tattle For the Gypsy's, and Well Below The Valley and few Others.He told me the songs I done where very well written, and would like to meet up with me some time, Another Uncle payed Harmonica, Tom Cousin in Sligo plays Accordion, and brother Thomas, is good at Tin Whistle. Also Thomas Mcdonagh, a good singer, Michaelle Reilly another good singer, and Micky reilly also Christine Reilly. I myself will be playing for a charity for Pieta House. A charity weekend ran by Tina Brogan. In Edgeworthstown, on the 10th - to 12th of Feb. In the Park House Hotel, a weekend of Art and Music. I will be playing on the Sat between 6-9. I want to give back, I was asked would I like to be a counselor. I said no, id rather be a like a friend, a genuine friend. I have a passion for music,country music. Wherever I go with it, make it big or not, I do it because I love it. Paul Gurney approached me about doing a Live and Local. do a live piece that will be put on social media, along with singers and musicians around Longford. I recorded two of my songs in his studio, I call myself the ROADSIDER. I would love to be doing more, gigs big or small. I can do over fifty backing tracks and around ten of my songs with Acoustic. The first song I did, I was only a year playing it now I think i have improved a lot since then, i am consumed by it, I am learning all the time and always looking to write more. Dream of mine is to go to NASHVILLE. I cant believe where I am now, to where I started out. 'Joe left me with the following'I Love to see people talking about how they feel they cant be helped if they dont talk. if you can't talk to family or friends, talk to a someone even someone you don't know sometimes it's better to talk than to let it build up inside of you Go to school, stay away from drugs, stay away from trouble if you can. I like to be remembered for trying to help people out when i am gone, that I did something to try help someone who has gone through what I have what I like to do is try and help if I can no matter what problems people have
parents Michael Purcell Mary 'Dowler' Purcell both from mullingar originally. Marys parents Philomena and Ollie. His grandparents on his father side, Eamon,.
brothers and sisters, Ashling, Luke, aleasha and brandon.
I was in various schools since I started schooling. from school in mullingar, to second class in Delvin then St Marys Edgeworthstown. now in St Mel's Longford Town, in my final year of 5th year, I didn't do the TY year. In Attic Youth house, couple years. Its a great out let for us at our age, just be sitting at home not doing much. after I lost dear friends to suicide, which I have never fully understood why. I couldn't do anything really I just switched off numb. they were Nathan Riley and Sophie Carty. Nearly four years with Nathan I think now, it me hard. after several months had passed I took to writing. suppose I went introvert, for awhile, can be like that sometimes. but i started to rap what I wrote, and Mc'ing. got great help via attic youth house Longford great encouragement from Kathleen Mahon, one of my mentors in the Attic youth house. she would help me with my song choice what suited me or not. My family are always pushing me in my Mc'ing and Rapping. did my first youth factor, last year, just lost out on 3rd spot by two votes. I applied again for the youth factor this year, I got by the auditions again and the second round, the final is this Saturday the 28th of Jan. in the second round, I got one of my best experiences. I was down on the list to go first. I was on the side of the stage I could hear the crowd shouting my name. I love the backstage feel, getting ready, the nerves. I had written a song only the other week, and when I went out on stage, half way through the song, everybody was singing my words, they all knew it. It was such a nice feeling very humbling, I couldn't believe it. on the same song I wrote on Facebook it has over 300 likes and 50 shares, already. Besides the rapping and Mc'ing, I tried down the years other things too. MMA, wasn't my thing, but played a lot of hurley, didn't do it in a while I dropped out of it. But going to start playing again. I played with Edgeworthstown, and also the U 14 and U 16 county hurling. Nial Ward, was on the county panel i remember was a coach. the future, just get through my Leaving Cert and see what happens after. I feel we have it very tough at our age and in life, the way things are. like to try maybe mechanics or something music wise, sound engineering. fully focused on this Saturday night, the winner gets a thousand euro and second place five hundred and third two hundred and fifty euro, please God, I get something. first thing I will do is buy Ed Sheering tickets next week. I sit at home listening to various rapping beats, and you just know when you hear a good beat, goes with what you have to say, and you just hope it sounds as good as you think. I just wish I have a good night and the people like it in the final, see how it goes.
Update, He won you know, and some national coverage, may it be the start of something big well done Michael Purcell
Longford Town, County Longford, Parents, Frank McNulty 'Sligo' Finola 'Shedwell' McNulty 'Longford Town. Grand parents father side from Sligo Francis McNulty and Annie McNulty. My mother side from Longford George Shedwell, who was a lcoal counselor in county council and Betty Shedwell Schooled in St Josephs and Secondary in the Convent. Following school went onto to to do further studies, with a PLC course in Secretarial Studies. Worked in Shannonside for eleven years, I loved that job. Worked in the evenings, I was devastated when I was made redundant, I literally cried my eyes out.. My life cannot not be talked about without mentioning a genetic ailment that has been with me since birth ' Cystic Fibrosis. It effects people in different ways, I lost a brother too it, when he was ages five and a half. I have been a CF campaigner for 10 years. I was extremely lucky to be picked for trials of new drug Orbamki. Vertex are ensuring that the drug is available to me until the government make final decision whether they reimburse it or not, following a protest I organised in December at Dail Eireann talks reopened and Vertex have made a new offer which is now with HSE & NCPE. I knew within three days I felt it, I felt a lot better, and after nine days I was convinced of its positive effects on me, because I felt like I was breathing better while out on a run, I pray and hope they give it the go ahead. doesn't bare to think, of them not passing it. I dream of applying for jobs getting back to work given the fact I have been so much healthier in past 3 years. I was lucky, never really had much to complain about til my late 20s with my first hospital admission at 31. I was in such asharp decline that when I was asked if I would like to take part in the trials I said yes, i would have done anything to try stop the decline, even though I was told it could be a placebo drug it was worth the chance. Without Orkambi a normal year, for me in the four -five years previous to taking Orkambi I would was in hospital for eight months out of the year. Orkambi is an expensive drug but what price on a life? And the cost savings of less than halve the hospital admsisions it basically pays for itself. Just after I completed the Dublin Marathon in 2012 Oct, my lugs were capacity of 59% & I seemed to go downhill drastically then by July 2013 my lungs were 39% In between Oct 2012 and July 2013 I think I had 6 weeks out of hospital. I have been campaigning for CF for over ten years now, so many campaigns a lot were fighting to get single ensuite rooms as we were admitted to 6 bedded wards with other very sick patients, people with CF need to avoid anyone that's sick theres now a dedicated unit in St Vincents after decades of patients fighting for it. I lost a brother Gary in 2004, Gary was special needs and we were extremely close, his death has had a profound efftec on me badly. Gary loved Barney the purple dinosaur, his room was full of him! The year Gary died Barney was coming to Ireland, I obviously I got him tickets & told him in January I can still see his face as he stood in the sitting room when we told him, him saying his dream was going to come true (I was arranging for Gary to meet Barney) Gary died in March a few months before the concert took place. I like to keep fit to give myself the best chance to fight off my CF. Exercise is extremely important. I try to walk between 2-4km a day but I only started running again there a few days ago. I had injuries so had to stop running for a while & then I got lazy because Orkambi was keeping me so much healthier, before Orkambi I was literally running to try to save my life & keep me well,since Orkambi its like I don't need to! My consultant wants me back running, Last year, a perfect example of the relapse of not taking the drug I was three weeks without it, due to a mistake in the delivery of it. Within 24hrs I was struggling to breathe and I tried to manage but after 3 weeks I ended up in hospital after a full year IV & hospital free. Orkambi makes a difference & people are losing their lives to CF everyday and a drug like Orkambi can make adifferece, but also has to be said its not the only answer to CF, Orkambi wont work for everybody, but everyone should have the opportunity to at least try it. I had the pleasure of meeting the man that made it. and he cried when after my testimony. and said it made his job worthwhile, he worked on Orkambi for 20 years.It was a very emotional meeting, both of us crying. When you consider it by the cost of a bed in a hospital, over 800euro a night, count eight months a year in hospital, not including the costs of IV antiobtiotics, physioterapists, doctors, deititians and much much more. in the last three years of taking Orkambi, I have spent just 12 weeks in hospital. Had I not had Orkambi it wouldve been 24 months at least. Life is very short. Last march I contracted Swine lu & Influenza A which made me extremely ill, the doctors told me it would take months & months for my lungs to recover and not to expect my lung function to go back to base level of forty two percent. If I didn't have Orkambi, I wouldn't be here today. my 40th birthday, I was in a wheelchair on oxygen, could barely talk,couldnt breathe, I was in a panicky state, which was not exactly helping matters. 6 weeks later not nly were my lung functions back up but they had jumped to 48% the highest Id gotten in years if this isn't a testament to how good Orkambi is then I don't know. Jillian left me with that advice to do exercising to help your mood and health
Longford town. Parents Thomas Farrell 'Ferefad & Margaret 'Monnie' Farrell Nee Tierney (Delvin). You ever hear of that book 'Valley Of The Squinted Windows', that was about Delvin, where Margaret is from. Infamous for talking about a general generic village in Ireland, but obviously was about Delvin because of geographical landmarks talked about.
I went to School Convent, The boys school, St Michael's, then on to the tech, I had a chance, to go to St Mels, I received a scholarship, but I didn't take it up,had to stay on with Willie Glennon, but got very bored and decided to go to the tech in the end. Can i say both my parents were twins, but no Twins as yet with mine or grand kids. But yeah they were both twins, mothers twin was a priest, and my fathers sister, only passed away recently, she was 105 years old. I Grew up in Killashe street Longford town. I did tiling after school, with a Frank Lulham, for a few years, before i went to Quinco, where Credit Union is now. Used to be a big general store like a supermarket before the new supermarkets came. sold everything form a needle to an anchor. MacManus used to own the fruit and vegetable, and delivered hug amounts of foods, that we use to sell daily by the tonne, and you could buy broken biscuits, there would always be packs that got smashed, sold them buy the weight. You wouldn't believe it now, but Longford was a hive for work for shops for pubs it was such a busy busy place. We sold in seasons, when tomato's came in we sold a tonne a day. I started in general terms before working up to buyer for Quinco. I remember I used to have to clean the windows everyday, no matter the weather. One day i was doing the windows, it was so heavy with rain, I went up to the manager. I said about the rain, being so heavy it was pointless, and he said 'Its a good habit to keep in' when I moved up the ladder I was made sure the next worker did it.but one day I was cleaning the windows when I noticed the business next door a hardware store. The windows looked a but grimy, I just thought why not had half hour to spare gave them a rub, and the John Quinn came out and thanked me and gave me a pound, a pound. I was on 7 pound a week back then, I cleaned them whenever I could, after that. It was hard work, but good work, I remember the cray, when a horse and cart pulled up to the side, I would have to pull the cray like an ass, was like one of them things you see in old films, when you get off a train, like a trolley full of suitcases. That would be so full of product I had to pull and unload, the sweets were the worst, had to store them up the top of the stairs. The owners Nephew, opened up the first Quinnworths, in Stillorgan I believe it was, Dont know of you remember Quinnsworth, was the big shopping center before Tescos took them over, we had one in town, where Mollaghans furniture place is now beside the train station.
Longford was a great place always busy even the night life, where i met herself, Kathleen Dolan, originally from outside of Edgeworthstown. Met her at the Longford Arms dancing nights. we had Longford arms the Annally hotel, Kelly's was a great spot too. Kellys I remember talking to a English gent, was his first time in Ireland , he was saying how amazing it was. You could fall out of one bar and into another without getting wet, where he lived in England you had to travel quite a distance. There was 56 busy pubs back then.When I worked in Quinnco, the volume of glasses we supplied was enormous, on a rental basis, they paid whatever, and paid full for what ever they broke, the amount was a very large amount. And when I was a young still at school, there was a mart held every first Mon of the month in town. Where Boots is now in the Town, used to be Kanes pub and Joe Rileys I used to get half a Crown, for cleaning up all the shite and dirt. But to explain half a crown was like 30 penneys. The Aldephi cinema or picture house, used to be where Aldi is now. Used to be a very big building but only one screen, but the seating was in three sections, first section The pit was wooden benches cheap and the best of crack, You could smoke etc, the middle seats good average seats were 1 and 9 pence, and if you had a girl with you and wanted to show off, you had a back section doubles seats, they cost 2 and 6 pence. I could have went to the cinema for a week on the half a crown. There was a place where you could go to buy loose fags, a tiny shop up the alley on Dublin street across form Milos now, where i think it was Miss Mac Dermott, used to sell them loose, and if you bought two you would get a free match. Not a stones throw away from where i grew up on Kilashee street, now Annally park, in between both was a Bakery and a blacksmiths. Toss pit you could see on a sat eve or Sunday morning, also the bakery, Welches. I remember being sent to get fresh bread, was so fresh was still hot, gave you brown paper bag, to keep it clean and from getting burnt. everybody was working them times, there was no greed. Their was a restaurant there also a miss Mangan ran it, a very simple restaurant but always busy, for worker, spuds veg and meat, nothing fancy nothing special but always busy. Frank Casey, from Keenagh, on Kilashee street where Butchers is now. Was a butcher who killed his own, Miss Mangan that ran the restaurant down the road, would send me up to get 5/6 pound of good frying steak. I would just say its for Miss Mangan, 'I know I know' I would bring it to her she would check quality of it by sticking her finger or thumb in it knowing how good it was. At times when it wasn't good enough to tough maybe, bring it back. Talking about my own life, I went on to work for Jimmy Mullingan, where I worked for 27 years or more. He had a tire place just down from where Tom O'Briens shop was in Teffia across from greyhound stadium is, now its Q&T grocery shop . Not only did we do tires, on weekends for a time myself and Jimmy went on to do a chip van. We couldn't keep up with demand we were so busy., outside of Longford Arms after dances, thousand people, we ran out of chips sometimes was so busy. Retirement now, spend most of my time reading and cooking. but have many fond memories, like when Electric first came, to countryside. The Germans brought it, with technician, but all it was a big generator outside of town. Was only lights at the time, there was no kettles or showers, I used to spend my time in my grans our in Ferefad on school holidays. was late 50s when the electric, came, I remember my gran would when it got dark we would be reading she would switch of the electric and put on the oil lamps on the wall lit by kerosene. what are you doing gran, haven't you electric 'You dont know what that is going to cost you'. You see she had paid for the kerosene already, it was an unknown, value. Used to be traveling shops, too.Came to my grans who would give the man any excess foodstuff, eggs etc for flour raisins currents etc. A neighbor of my grans if i remember correctly, had an ass and car, and would go into town to do his shopping, in Franky Woods place. Where Louis Herterich is now, the alley that led into a stable yard, he would go in and tie up the ass, give a bit of hay. do his shopping and go and get drunk, he was a big man over six foot three, the cart was very small, but he would fall into his cart, and is told the ass would shake his head and bring him home to the front door. we had a horse and cart too, and every Sunday to mass we would go in it, it was gleaming the cart & horse I loved it. Every year, a tinker traveler, would come around and mend all sorts of pots and pans, to a ponger, a big metal two handed tin mug. they were a welcomed sight, and good workers too, never any trouble, they would even sleep in shed sometimes. They were great days, though a long way from days today'.
I asked Tom about what his philosophy is on life.,
You get nothing from nothing
Hazel 'Anne' Robinson
Drumlish, born Dublin. Lived in Wicklow, Bray 'Greystones. Moved around a few places before settling for in Longford with family. Spoke of many friends she had met on the way, and through social media, has caught up with a lot of them. Gave her great experiences and many friendships having lived in several places, she will always cherish and many friendships. 'I would call Longford home, because its the longest i have stayed anywhere'. Mother Hillary 'Anne' Robinson, from Offaly originally. And many will know Hillary for Hungry Horse Outside, what started, with people leaving a few animals on land they had to a fully recognised Charity. Grandparents, Paddy Robinson, whom is nearly 94 years of age. Anniscoffee, Milltown Pass West Meath. Paddys late wife was Philomena 'Monica' Robinson. Hazels siblings, one brother Adam and two sisters Mandy and Rachel. Hazel left schooling early to start a carer in Hair dressing. In Wavelenghts in Mullingar, used to be over Shaws if its still there. When she had her first child Gypsie, she became a full time mum and carer. 'I was young mother, didn't know much about it, but here i was with Gypsie. Soon in her early life discover she had Cystic fibrosis. I didn't know what is was, but within a short time, i was not only a mother but also nearly a nurse. With gypsies condition's there where many things i had to watch out for. It was after 3 days when they noticed something, and after being sent to Crumlin Hospital. We where there for a month and half before they knew what it was exactly. I was taught how to do physio, and how to work a NG tube, a feeding tube system that would send food through nose to stomach. Also nebuliser, and very dangerous, if Gypise got an affection of any kind. Having a lower immune system. I had to watch out for any affection and the earlier the better, could mean life or death. I was young, I was training one minute, next thing I was a mother. Poor Gypsie was sick, I would see other young couples with their kids, pushing around prams. I had to learn to almost be nurse overnight. At 17/18 was a big responsibility. Gyspie 14 years old, now, and i hadn't much outside help and 14 years on still don't. In the early years, she could be in hospital for 2 weeks and out for 3 months. I rem hearing when i was young, that if you ever looked in the eyes of a dolphin, you would never see the world the same way again. When she was in the incubator o promised i would bring her to Disney. When she eight years old, it was a dream come true for her when I brought her there. The illness is a continually deterioration as time goes by, more hospital time more tablets. I remember my mother saying to me once, 'If you look hard enough, you will all ways find something good a silver lining'. Its true, when we get any free time, we use that, when you have life , you grab it, doing things you enjoy. The beauty of the world, simple things, you wouldn't normal see, but when life is lived by day, you enjoy, Wicklow mountains, appreciate it more than others. I be honest if it wasn't for this illness I would probably be a narrow minded person. We went to Iceland awhile ago, any chance we get we use it. Been to Paris, Prague, Austria, Budapest, whale spotting. That was a great experience i will always cherish, my sister came too Rachel. Gpysie had booked the whale hunting sightseeing tour, we realised when we got the place were staying in, it was 550 kilometers away . I asked gypise, well what you think, do you wanna get up and go chasing whales. Yes, she said. We left the place we were staying in and traveled. Route one i think it was, on the wrong side of the road on the wrong side of the car for me, was so alien to what i am used to. It was the most beautiful scenery i had ever seen all the way. And rachel had one of my favorites story on cd, under the hawthorn tree, we listened to that and songs. We just got there before the boast was going. On the way back it was kind of scary the dark, the black ice, after a time we pulled in. So eerie, Iceland is so quiet, not a huge population When we stopped to get a few minutes break, looked up to sky ad there was the aurora borealis . I never forget my own first trip away, to america Chicago. My mother seen in me i needed a break, and herself an partner mick got me ticked to america. You either sink or swim they said, your going. There i was on my own first time out of Ireland. Just got off plane, heading into city, all the housed where small, i was thinking this cant be right. Not like the films i thought. The train went underground, and i think i jumped off as top early, but left train went up steps into city, and was like wow. Al the skyscraper,s i was scared and excited at same time. I didn't know what to do , where was i going, i stopped a person ans asked where is the nearest Irish pub. I didn't understand what person said to me, north south east west, five blocks, i just walked and found one eventually. And between there and sight seeing, i spent most of my days. People love the Irish there, i dint have to buy any drinks, i was singing karaoke all the time having great crack. Got a spin on a Harley Davidson, someone side a museum up the road there thats free in, so i went there, there i was standing look at self portrait of Vincent Van Gogh. Life Its so unpredictable, you cannot plan anything, you don't know when you get a window to do anything, just do things on the spur of the moment. There is so much bad out there politics, but the good outweigh the bad. Small gestures, that mean so much. Like Pj Bodhranjo that took time out of his life and wrote a song for Gypsie. Not long ago, I was picking up a lady from a hotel in Dublin, an infamous character from goggle-box in UK TV, Sandra, on the way into City we were thinking of heading to the Apollo house, as she was on way to see gypsie. I have to pinch myself, like, here i am picking up a TV personality in Dublin airport. Many moments like that, teach you that Life has many twists and turns that surprise you.
All of gypsies life i have been praying for a miracle, for a cure, for gypsies cystic fibrosis. And five years ago , all our prayers were answered when we heard of a new drug was in development. Would covered 80 percent of sufferers. We waited and waited and waited when it eventually came to market, it was a devastating, and a huge blow to cystic fibrosis sufferer, it was like a carrot dangling in front of you, it was there on a shelf, but cant have it because of an huge value that was out on it bu vertex.
credit to the journal.ie for background on Orkambi story and information '' is a medicine for cystic fibrosis treatment. Orkambi it has been said has transformed the lives of cystic fibrosis sufferers. Around 550 people are in need of such treatment, the HSE have so far not supported the drug, because of its high cost. They have had meetings with Vertex the makers to try and get a reasonable price. So far its still not been supported by government. To the dismay of sufferers and family's of those involved. In Ireland there is a high rate of the disease, in comparison to head of population, the highest in the world, and even the most sever cases of cystic fibrosis , over 1200 sufferers. It only makes sense to support he drug, as it stands it is 160 thousand a year for one patients, a exhortation cost, that set up by the company that makes it, and has kept the details private and all rights to patents, so no generic version can be made. At the same time, even at that price, the benefits the government would save, via other other expensive drugs, hospital visits, needing transplants. ''
On a lighter note, I rem once. 3 years ago, it was a hot hot summer, everybody in the hospital, was irritant mood. Gypsie asked me for an ice cream, but i couldn't take her out. I had seen a comp on Facebook, i made a comment under, where they were asking, why do es you company deserve to get ice cream. I spoke about the nurses doctors patients, all deserved it at Crumlin children's hospital. They sent over an ice cream van, and i brought down gypsie to it, and gypsie 'got into van and served out over 200 hundred ice creams to doctors nurses patients who came down in wheel chairs, any means necessary. I said to Gypsie, your lucky you have me as a mother, if i cant bring you out t get ice cream, i can bring it to you. I also bought a caravan , out of the respite monies, so the whole family could be closer. See it for sale in Tullamore, went bought it. Took family in it to Clondalkin Dublin. A caravan park, and when Gypsie was allowed out we went to parks walks, etc, but just to have family closer as i have two other beautiful children also. Also may I add Gypies is such a great yo lady, she also donated hair to Charity.''
I asked Hazel, with her experience of life what would be her advice to people.
'' Id there is something your passionate about something, keep doing it doing it regardless of what any body says, even when people are sick of it, keep going. people know whats right and wrong. , don't let anybody say anything against you. You believe in something fight for it. Also i find it very frustrating if you see something totally unjust i cant see why people turn a blind eye to it.
Nobody knows whats around the corner if it deosn't people they don't want to know. But in a second your whole life can change you never know what may happen in life. My biggest inspiration in life is off course my mother. She has never not being working, a single mother, Rachel my sister had cerebral palsy, i used to help look after her when i was young. But for sure i get my drive from her